The 2022 SI Swim Search finalist became a “Gen-Z thought leader and chronic illness advocate” and a student at the University of Southern California on track to receive her Master’s in innovation design, business, and technology. Yesterday, the 24-year-old opened up about her recent struggles with EDS on Instagram. “Hi party people. It’s been some time since I’ve openly discussed my chronic issues here. But I’ve been struggling. A lot,” she wrote. “From the outside, things probably looked fine. I smile & laugh, often. But inside I’m having an extremely challenging time. You might be wondering how I “do it all” or how I am “the busiest person you know,” but the truth is, I have an amazing team helping me as I go. Providing me with the time, space & energy to show up & work but also take time to rest.” Robinson continued: “I push myself to go, and get things done, because what other choice do I have? Being a creator means being my own boss. Which means breaks but also 24/7 attention to detail. At least at this stage of my creator journey,” she said. On each episode of her podcast, she speaks to different Gen-Z change-makers and creative innovators across various social advocacy platforms to “deconstruct ways to navigate the world to make a more positive and impactful future.” The Everything You Need Is Within You podcast host explained that she has been “stuck in the doctor Olympics.” After seeing a chronic pain specialist, an integrative medicine doctor, a neurologist, a dermatologist, a women’s health specialist, a psychiatrist, a dietician, an endocrinologist, a GI specialist, an allergist, and even a holistic medicine doctor, no one has “figured it out.” “Living with EDS is annoying to be blunt. After a year on pain meds, my body has recently been presenting a variety of issues. EDS is dynamic. It ebbs and flows, causing pain without a direct source,” she wrote. “I have not shared my chronic health journey in some time, because I was doing so well for a year. And I got comfortable living in a body that allowed me to do more than I could before, thanks to the pain meds I was on. But now, I’m going through it. Again. It’s the same cycle I went through when I hit my burnout back in 2019. And it sucks to come to terms with it being absolutely imperative for me to slow down.” Robinson’s “limit” isn’t static; she described how the level of activity her body can handle varies daily. She’s tracked her “breaking points” and, with the help of her doctors, tested a myriad of ways to prevent flare-ups and “live life better.” Over the past few years, Robinson has become a face for people with illnesses wanting to live an ambitious life–a role she doesn’t take lightly. John Lamparski/Getty Images Robinson concluded: “So if you’re struggling, especially with something invisible, I am here for you.” More Pop Culture:
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